Saturday, March 29, 2008

Has it REALLY been that long? YIKES!!!

I didn't realize I hadn't posted in ages! OK-so a quick update-the day of my last post, Keelin ended up in the Emergency ROom with a dislocated elbow. She was just walking along holding my hand and fell down. She put no resistance in her muscles and I heard her elbow go "pop". She screamed bloody murder and I knew we were on our wayto the e/r. Apparently her low muscle tone leaves her prone to these types of injuries. Great..........

In apraxia news, Keelin's SLP has decided that Keelin would benefit greatly from learning sign language. Keelin's brain keeps learning new things, but her ability to communicate these new things is still waaaay behind. She is becoming very frustrated so we need to find a way to help her "speak" to us. In therapy land, this is called AAC (augmentive and/or alternate communication). So we are ordering some Signing Times DVDs and flash cards. I will let you know how it goes. She is also sick with a sinus infection that turns out is resistant to the antibiotic she was on. So she started a new one and we will see how it goes. Cultures from her sinus will be back on Monday. She also has her Gastric Endoscopy this coming Friday at CHOC. It's a general anesthesia procedure so wish us luck!

In Baseball news, Jared's team is 4-0. He is their starting pitcher and he is a rock star! Incredibly athletic and talented. He has a big game against the Yankees tonight.

In glass news....I haven't had alot of time to do glass or update my website. I am working on a large custom order currently. That's always nice-I like those. I am leaving after Keelin's procedure on Friday for a glass and bead expo in Las Vegas. Two days with my glass friend Jen. No hsuband, no kids. Me, glass and gambling! OMG!!!!!!!! ummmmm WOW!!!! I am really looking forward to the break. It's been a long time!

That's all the news that's fit to print. Be good people!

CIAO!

Monday, March 17, 2008

Entirely gorgeous!!!


OK-so Keelin has been a mess today. Speech therapy for her Apraxia was a mess, she was very whiney and not herself. I guess everyone has one of those days..........Mondays-Argh.
These are the pictures from the five good minutes she had today. She NEVER lets me do her hair, but I caught her in a distracted mood and put a super style on her! A bow in her hair and everything!

Then, I got out the camera and caught some amazing candid shots. I love these pics. Star quality for sure. My totally biased opinion!!!

Of course, the hairstyle lasted about three minutes before she asked me to take it down-you know-by yanking it out and grunting at me (uh-uh-uh!). A very insestent grunt. So while my attempt at Keelin Super Model was short lived, I got some great memories!

Everyone, have a super day

Laura
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Sunday, March 16, 2008

What's happening?

Well-here's a quick update from our incredibly busy lives. Keelin had a CT scan last week, no anesthesia and no restraints. She did it like a big girl and even though she was scared, she stayed still while I sang twinkle, twinkle little star to her. I was SO PROUD of her!

This Tuesday, Keelin has a visit with Dr. Tournay-the pediatric neurologist. We need an update on her head size(as it is too large in comparison to the rest of her) and need to discuss her apraxia dx. Don't know if she will order a repeat MRI. I was surfing the web and ran across a study indicating that large cortical areas are a sign of apraxia. Don't know if it's causal, but if I recall from Keelin's Brain MRI at two months-she had very large cortical areas noted as abnormality by the radiologist. Tournay has the records.

Jared is rocking it out in baseball, He is the starting pitcher and they are 2-0. GO Angels!!!!!!

Keelin's having a cow so that's all for now!

Sunday, March 9, 2008

Toooooo Cute

ok-love this picture and blogger lost my original post about it. Damn you Blogger!
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Old and Improved

I just listed this Key pendant in my Etsy shop. Love it, love it, love it. I have a had a fascination with recycling old objects into wearable items. Keys and watch faces,,,and soon to be more.
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Wednesday, March 5, 2008

March Madness!!

Hello from Insanity central........

DId I tell you how crazy it is over here? Did I? Just a check in and maybe some new pics soon.....

I did the first show I have done in a looooong time-Dana Point Festival of the Whales........quieter than I would have liked-but sales were OK and I met some VERY NICE people. The total upside is that my Mom, Pauline, watched Keelin for us OVERNIGHT!!! This is the first time the husband abd I have been away over night since Kee has been born. Almost two years. By Mom's account, she did great. Non was worried that she wouldn't be able to tell what Keelin needed because she doesn't really speak but they got along great and all went smoothly. One night away felt like a whole vacation for us!

On the Apraxia front, Keelin is working hard in speech therapy. She gets a bit overwhelmed at times, but tries to find a way to bounce back and finish the tasks asked of her.

I have been wrangling insurance companies and logging too much time on the phone trying to sort out billing messes and get approvals for procedures. Keelin is supposed to have a CT scan this week. We are going to try it w/out a general anesthesia if I can ever get the radiology department and the allergist to quit crossing wires and get her on schedule. Trying to get this done for over a week now! ARgggh!

Jared is doing fantabulous! It looks like he will be his baseball teams "go to" guy for pitching. He is going to be their starter. He is so fearless up on the mound. It makes me happy to watch how he has matured up there and how much he loves the game. With so much going on in our lives, I am glad for some spot of normalcy. It's nice to just watch your kids have fun once in a while! His first game is a week from today.

I am going to be revamping my online store. Just need to get the pictures taken........I know people are looking for new stuff. Sorry!!! I will get there! I miss my glass!

So much more going on-but my world is calling me.....drop me a line, send me a letter, throw me a life ring, I have fallen and I can't get up. Just kidding-I can get up! (obscure commercial reference).

Have a great one all-

Laura